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Gorlin Syndrome Alliance

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Jul 31, 2026 •

Ciliopathy Summit: Frontiers in Patient-Scientist Collaboration

By Gorlin Syndrome Alliance
Jul 31, 2026 • 1 min read

SkinJect Clinical Trial Receives FDA "Study May Proceed" Letter

By Gorlin Syndrome Alliance
Jul 31, 2026 • 2 min read

Connect with the Non-Melanoma Skin Cancer Community at the First Skin Cancer Champions Patient Advocacy Summit

By Gorlin Syndrome Alliance
Jul 30, 2026 • 1 min read

Parents Value Early Genetic Diagnosis Despite the Challenges of Cancer Surveillance

By Gorlin Syndrome Alliance
Jul 30, 2026 • 1 min read

UV Awareness July 2026 Article

By Gorlin Syndrome Alliance
Jul 08, 2026 • 2 min read

A Roadmap for the Future: Introducing the GSA 2026 Research Roadmap

By Gorlin Syndrome Alliance
Jun 30, 2026 • 3 min read • 2

Beyond Sunscreen: A Conversation About an Additional Layer of Protection Against UV-Induced Damage

By Gorlin Syndrome Alliance
Jun 30, 2026 • 2 min read

Growing Global Partnerships: GSA Joins Maastricht UMC+ Patient Day in the Netherlands

By Gorlin Syndrome Alliance
Jun 30, 2026 • 1 min read

NHS: Researchers Need More Than Numbers—They Need Your Story.

By Gorlin Syndrome Alliance
Jun 09, 2026 • 2 min read

Gorlin Syndrome Alliance Announces 2026 Research Grant Recipient

By Gorlin Syndrome Alliance
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Contact Us

info@gorlinsyndrome.org

267-689-6443

 

Gorlin Syndrome Alliance

3005 S. Lamar Blvd D109-264

Austin, TX 78704

The Gorlin Syndrome Alliance is a 501 (c) (3) nonprofit organization.  (EIN# 34-1915691).

 

Join the GSA Community to find support, empowerment and hope. You are not alone.
 
Our mission: to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.