Financial & Health Care Advocacy Resources

General:

The NORD RareCare® Patient Assistance Programs help individuals living with rare diseases:

• Obtain medication

• Receive financial help with insurance premiums and co-pays

• Get diagnostic testing assistance

• Receive travel assistance for clinical trials or consultation with disease specialists

• Provide caregiver respite

• Offer support during emergencies

• Gain knowledge about rare diseases

• Connect with other patient assistance programs

PAF provides personalized case management and assists patients with the costs of care and practical expenses. All services are provided individually to those patients that are facing a chronic, life-threatening or debilitating diagnosis, and the caregivers and providers that are working on behalf of a patient. Programs include:

• Case Management Services & MedCareLines
• Co-Pay Relief Program
• Financial Aid Funds
• Apply for a Scholarship

Patient Access Network Foundation accelerates access to treatment for those who need it most and empowers patients on their healthcare journeys. They provide critical financial assistance for treatment costs and advocate for policy solutions that expand access to care.

Global Genes RARE Concierge provides free resources, education, and connections to the rare disease community. Support includes guidance on reaching a diagnosis, finding specialists or care resources, understanding research and clinical trials, accessing social and emotional support, and identifying financial assistance for treatment, travel, or care.

Prescription Drug Programs: