The Gorlin Syndrome Alliance (GSA) knows having a rare disease can be a financial burden. We’ve created this page to provide access to patient support programs available to the rare disease community. If you know of additional resources we should include on this page, please contact the GSA at info@gorlinsyndrome.org. The GSA is not responsible for the content on the websites listed below
NORD Patient Assistant Program (RareCare)
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
EveryLife Foundation for Rare Diseases
EveryLife Foundation empowers the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.