NOW HIRING: Development & Communications Manager

The Gorlin Syndrome Alliance (GSA) is a national nonprofit organization dedicated to improving the lives of people living with Gorlin syndrome through research, education, and support. Together with patients, families, researchers, and clinicians, we are working to accelerate the development of better therapies and, ultimately, a cure for this rare genetic disease.

We are a small, highly collaborative team where every person's contributions matter. The work of this role directly supports research initiatives, donor engagement, and programs that help individuals and families affected by Gorlin syndrome.

Position Summary

GSA is seeking a part-time Development & Communications Manager to lead grant writing, support donor development efforts, and create compelling communications that strengthen fundraising and engagement.

This role is ideal for an exceptional writer who can transform ideas, progress, and impact into persuasive communications for donors, funders, and other stakeholders. The successful candidate will be highly organized, able to manage projects independently, and comfortable taking ownership of their work.

Working closely with the Executive Director, this individual will support donor cultivation and stewardship activities while helping expand GSA's fundraising efforts. The position also collaborates with our Research Coordinator, who provides scientific expertise and technical support for research-focused grant applications and reports.

This is an opportunity to make a meaningful contribution within a small organization where strong work is highly visible and where every grant secured, donor engaged, and story told helps advance research and support the Gorlin syndrome community.

Key Responsibilities

Grants & Development

• Manage the grants calendar and application pipeline.
• Research and identify grant opportunities aligned with GSA's mission.
• Draft letters of inquiry, grant applications, progress reports, and related materials.
• Coordinate proposal development and submission deadlines.
• Collaborate with the Executive Director and Research Coordinator on grant applications and reporting requirements.
• Support donor cultivation, stewardship, and engagement activities.
• Partner with the Executive Director on major donor development efforts, including donor communications, prospect research, relationship management, and fundraising campaigns.
• Maintain accurate grant and donor records in HubSpot or other CRM systems.

Communications

• Develop and manage a donor and fundraising communications calendar.
• Draft donor updates, annual appeals, stewardship communications, website content, and other fundraising-related communications.
• Write compelling stories that highlight GSA's impact and the experiences of individuals and families living with Gorlin syndrome.
• Create content that strengthens engagement with donors, funders, researchers, healthcare professionals, and the broader community.
• Coordinate communications content with team members and vendors responsible for distribution, posting, and implementation.

Qualifications

• Bachelor's degree required.
• Exceptional writing, editing, and communication skills are essential in this role.
• Demonstrated ability to write in a warm, engaging, and persuasive voice.
• Strong organizational, project management, and time-management skills.
• Ability to manage multiple priorities and meet deadlines with minimal supervision.
• Experience in grant writing, nonprofit development and communications, and fundraising.
• Experience supporting donor cultivation, stewardship, or fundraising activities.
• Familiarity with CRM systems required; experience with HubSpot preferred.
• Proficiency with Google Workspace.
• Strong attention to detail and follow-through.

Position Details

• Part-time independent contractor position
• Approximately 30-40 hours per month
• Fully remote
• Flexible schedule
• Anticipated compensation range: $40-$60 per hour, depending on experience

To Apply

Please submit a resume, cover letter describing your interest in the position and relevant experience, and two writing samples. Writing samples should include both a grant proposal, grant application, letter of inquiry, or similar fundraising proposal, as well as a donor-facing communication such as a donor appeal, stewardship letter, fundraising email, newsletter article, or impact story.

Writing samples should primarily reflect your own writing, judgment, and editing. Use of AI-assisted tools is permitted; however, applicants should disclose whether AI was used in the preparation of submitted materials and briefly describe how it was used. We are particularly interested in understanding your ability to develop authentic, persuasive communications for donors and funders.

Qualified candidates selected for interviews may be asked to complete a brief writing exercise.