The mission of Gorlin Syndrome Alliance is to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.
You can help us invest in research that leads to better treatments and prevention of new symptoms while supporting and empowering everyone who lives with Gorlin syndrome.
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Resources are available to help and empower you as a patient or a caregiver.
Sharing your experiences can fuel discoveries and improve care. Help drive research.
You are not alone. Connect with a community of others who share your journey.
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Contact Us
info@gorlinsyndrome.org
267-689-6443
Gorlin Syndrome Alliance
3005 S. Lamar Blvd D109-264
Austin, TX 78704
The Gorlin Syndrome Alliance is a 501 (c) (3) nonprofit organization. (EIN# 34-1915691).
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