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Changing lives. Together. 


The mission of Gorlin Syndrome Alliance is to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.

You can help us invest in research that leads to better treatments and prevention of new symptoms while supporting and empowering everyone who lives with Gorlin syndrome.

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Gorlin syndrome is a rare disease caused by a gene mutation that affects development before birth and tumor suppression in all organs of the human body throughout life.
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Newly Diagnosed

Resources are available to help and empower you as a patient or a caregiver.

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Natural History Study

Sharing your experiences can fuel discoveries and improve care. Help drive research.

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Find Community

You are not alone. Connect with a community of others who share your journey.

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Latest News

Skin Cancer Champions Summit

Skin Cancer Champions Summit

by Gorlin Syndrome Alliance
GSA collaborates with RareKids-CAN to enhance clinical trial readiness for rare diseases, sharing insights on Gorlin syndrome and registry management.
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Connecting Canadian Families and Researchers with Gorlin Syndrome Data

Connecting Canadian Families and Researchers with Gorlin Syndrome Data

by Gorlin Syndrome Alliance
GSA partners with RareKids-CAN to enhance clinical trial readiness for rare diseases in children, promoting awareness and resources for families and researchers.
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Gorlin Science Explained: BCC Treatments

Gorlin Science Explained: BCC Treatments

by Gorlin Syndrome Alliance
Join the Gorlin Syndrome Alliance for live discussions on BCC treatment options, featuring expert insights and Q&A sessions. Get informed and ask your questions.
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Contact Us

info@gorlinsyndrome.org

267-689-6443

 

Gorlin Syndrome Alliance

3005 S. Lamar Blvd D109-264

Austin, TX 78704

The Gorlin Syndrome Alliance is a 501 (c) (3) nonprofit organization.  (EIN# 34-1915691).

 

Join the GSA Community to find support, empowerment and hope. You are not alone.
 
Our mission: to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.