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Changing lives. Together. 


The mission of Gorlin Syndrome Alliance is to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.

You can help us invest in research that leads to better treatments and prevention of new symptoms while supporting and empowering everyone who lives with Gorlin syndrome.

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Gorlin syndrome is a rare disease caused by a gene mutation that affects development before birth and tumor suppression in all organs of the human body throughout life.
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Newly Diagnosed

Resources are available to help and empower you as a patient or a caregiver.

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Natural History Study

Sharing your experiences can fuel discoveries and improve care. Help drive research.

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Find Community

You are not alone. Connect with a community of others who share your journey.

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Latest News

Beyond Sunscreen: A Conversation About an Additional Layer of Protection Against UV-Induced Damage

Beyond Sunscreen: A Conversation About an Additional Layer of Protection Against UV-Induced Damage

by Gorlin Syndrome Alliance
Explore an innovative plant-derived supplement that may enhance UV protection for those with Gorlin syndrome, complementing traditional sun safety measures.
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Growing Global Partnerships: GSA Joins Maastricht UMC+ Patient Day in the Netherlands

Growing Global Partnerships: GSA Joins Maastricht UMC+ Patient Day in the Netherlands

by Gorlin Syndrome Alliance
The Gorlin Syndrome Alliance participated in the Maastricht UMC+ Patient Evening, highlighting advances in research and care for Gorlin syndrome patients globally.
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NHS: Researchers Need More Than Numbers—They Need Your Story.

NHS: Researchers Need More Than Numbers—They Need Your Story.

by Gorlin Syndrome Alliance
Join the Natural History Study for Gorlin syndrome to share your unique experience and help advance research for better care and understanding of this condition.
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Contact Us

info@gorlinsyndrome.org

267-689-6443

 

Gorlin Syndrome Alliance

3005 S. Lamar Blvd D109-264

Austin, TX 78704

The Gorlin Syndrome Alliance is a 501 (c) (3) nonprofit organization.  (EIN# 34-1915691).

 

Join the GSA Community to find support, empowerment and hope. You are not alone.
 
Our mission: to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.