News from the Gorlin Syndrome Community


Learn more about our work to find better treatments and a cure for Gorlin syndrome
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Living Well

Get the info you need to best manage the signs and symptoms of Gorlin syndrome
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Gorlin Syndrome and Children

Help your child with Gorlin syndrome grow and thrive through all their ages and stages
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Signs and Symptoms

Learn about the different signs and symptoms of Gorlin syndrome and how they may affect you
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We’re Here for You

Get Connected

Be a part of our active community of people affected by Gorlin syndrome and those who love them
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Get Support

Learn from others with Gorlin syndrome at one of our health events or by joining our online support community
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Get Informed

We teamed up with leading physicians, researchers and patient advocates to bring you a wealth of resources for Gorlin syndrome
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Get Involved

Help us raise awareness and funds to support Gorlin syndrome research
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Get the latest news to help you understand and manage your Gorlin syndrome and live well