Skip to main content

GSA Logo High Res No Background (1) (2)-1

 

DONATE NOW

Changing lives. Together. 


The mission of Gorlin Syndrome Alliance is to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.

You can help us invest in research that leads to better treatments and prevention of new symptoms while supporting and empowering everyone who lives with Gorlin syndrome.

Donate Now
website (9)
Gorlin syndrome is a rare disease caused by a gene mutation that affects development before birth and tumor suppression in all organs of the human body throughout life.
7

Newly Diagnosed

Resources are available to help and empower you as a patient or a caregiver.

LEARN MORE
3-Jul-22-2025-12-23-17-7723-AM

Natural History Study

Sharing your experiences can fuel discoveries and improve care. Help drive research.

ENROLL NOW
5

Find Community

You are not alone. Connect with a community of others who share your journey.

JOIN US

Latest News

January Newsletter
Gorlin Syndrome

January Newsletter

by Gorlin Syndrome Alliance
Members of the GSA’s Medical and Scientific Advisory Committee (MSAC) have collaborated to author a statement on the use of superficial radiation therapy (SRT) as a treatment option for basal cell carcinoma(s) (BCCs) in people with Gorlin syndrome. It is important to share this critical information with your healthcare provider(s).
Read More
Read More
December Newsletter
Gorlin Syndrome

December Newsletter

by Gorlin Syndrome Alliance
Members of the GSA’s Medical and Scientific Advisory Committee (MSAC) have collaborated to author a statement on the use of superficial radiation therapy (SRT) as a treatment option for basal cell carcinoma(s) (BCCs) in people with Gorlin syndrome. It is important to share this critical information with your healthcare provider(s).
Read More
Read More
GSA Executive Director Featured on PeDRA Pearls Podcast
BCC

GSA Executive Director Featured on PeDRA Pearls Podcast

by Gorlin Syndrome Alliance
Members of the GSA’s Medical and Scientific Advisory Committee (MSAC) have collaborated to author a statement on the use of superficial radiation therapy (SRT) as a treatment option for basal cell carcinoma(s) (BCCs) in people with Gorlin syndrome. It is important to share this critical information with your healthcare provider(s).
Read More
Read More

GSA Logo High Res No Background (1) (2)

Contact Us

info@gorlinsyndrome.org

267-689-6443

 

Gorlin Syndrome Alliance

3005 S. Lamar Blvd D109-264

Austin, TX 78704

The Gorlin Syndrome Alliance is a 501 (c) (3) nonprofit organization.  (EIN# 34-1915691).

 

Join the GSA Community to find support, empowerment and hope. You are not alone.
 
Our mission: to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.