Join us at the 2019 National Conference

June 14-16 in Philadelphia

Learn more about our work to find better treatments and a cure for Gorlin syndrome

Get the info you need to best manage the symptoms of Gorlin syndrome

Help your child with Gorlin syndrome grow and thrive through all their ages and stages

Learn about the different symptoms of Gorlin syndrome and how they may affect you

Connect to our group of passionate Gorlin syndrome patients, caregivers and medical professionals

Learn from others with Gorlin syndrome at one of our health events or by joining our online support community

We teamed up with the leading researchers and advocates to bring you the largest library of Gorlin syndrome resources

Help us raise awareness and funds to support Gorlin syndrome research