Living with Gorlin Syndrome

Living with Gorlin syndrome can be challenging. We’ve created the following resources to help people with Gorlin syndrome live well and thrive.

gorlin syndrome and health care

With Gorlin syndrome, health care is a team sport and you’re the captain

Find help with health care

Gorlin syndrome is a complex and rare disease and knowledge about its management is not widespread among health care providers. In this section, you’ll find information on how to field a care team that is right for you and your health needs

Get expert advice

The more you know about Gorlin syndrome, the better. Get the info you need with the GSA Online Magazine, newsletter or in-person at the Gorlin Syndrome Alliance National Conference.