GSA 2027 Conference

"Me too."

Whether you're managing your own diagnosis, raising a child with Gorlin syndrome, supporting a loved one, or caring for patients in your practice, there are moments when you wish someone truly understood.

Every two years, the Gorlin Syndrome Alliance brings together individuals and families living with Gorlin syndrome alongside the clinicians, researchers, and healthcare professionals working to improve care and advance research.

It's a weekend of learning, connection, and hope.

Because this is more than a conference.

It's where our community comes together.

Why People Come

Because no one should have to navigate Gorlin syndrome alone.
Many attendees tell us that the first conversation they have with another family changes everything.
Parents meet parents who have already walked the road ahead.
Adults connect with others who understand daily life with Gorlin syndrome without needing an explanation.
Children meet other kids just like them, often for the very first time.
Researchers hear directly from the people whose lives inspire their work.
Clinicians build stronger partnerships with the community they serve.
Those connections often become friendships that last long after the weekend ends.

What You'll Experience

Educational Sessions

Hear from nationally and internationally recognized experts as they share the latest developments in research, clinical care, genetics, BCC management, emerging therapies, and more.

Community Connections

One of the most meaningful parts of every GSA conference happens between sessions.

Spend time getting to know other adults living with Gorlin syndrome, parents, caregivers, and families from across the country and around the world. Share experiences, exchange ideas, and create lifelong friendships.

Ask the Experts

Participate in open discussions and Q&A sessions with clinicians and researchers who specialize in Gorlin syndrome.

Research Updates

Learn how the Gorlin Syndrome Alliance is investing in research and hear firsthand from investigators working to improve treatments and advance scientific understanding.

A Weekend Designed for Everyone

Adults Living with Gorlin Syndrome

Meet others who understand your experiences, learn about current research, and build connections that continue beyond the conference.

Parents & Caregivers

Share stories, ask questions, and connect with families navigating many of the same challenges and milestones.

Children & Teens

Young attendees often discover something extraordinary: They're not the only one.

Friendships formed during conference weekend often last for years.

Medical Professionals

Collaborate with colleagues, engage directly with patients and families, and gain valuable perspectives that extend beyond the clinic.

Researchers

Connect with the patient community, exchange ideas with fellow investigators, and help shape the future of Gorlin syndrome research.

Meet us in Music City

Marriott Nashville at Vanderbilt University

Nashville has long been known as a place where stories are shared, voices are heard, and people come together around something meaningful.

We couldn't imagine a better setting for our 2027 conference.

Located just minutes from downtown, the Marriott Nashville at Vanderbilt University offers comfortable accommodations while keeping you close to Nashville's restaurants, parks, museums, and iconic attractions should you choose to explore during your stay.

Our room block is available to book now.

Preliminary Schedule

Thursday, June 24 - Evening Welcome Party!

Every great conference begins with a warm welcome.

Check in, grab a refreshment, and join us for an evening welcome party before the conference officially begins.

You'll reconnect with familiar faces, make new friends, and settle into a weekend surrounded by people who understand your journey.

Friday, June 25

Breakfast, lunch and snacks served.

Opening Session

Educational Presentations

Evening Social Event

Saturday, June 26

Breakfast, lunch and snacks served.

Expert Presentations & Panel Discussions

Community Activities

Sunday, June 27

Breakfast served.

Breakout Sessions

Future of Gorlin Syndrome Research & the GSA

Conference Wrap Up

FAQs

Is this conference only for people with Gorlin syndrome?

Not at all. We welcome individuals living with Gorlin syndrome, parents, caregivers, family members, clinicians, researchers, genetic counselors, students, and healthcare professionals.

How much does registration cost?

Adults 18+: $50/per person

Children Age 13-17: $25/ per person

Kids 12 & Under: Free

I've never attended before. Will I fit in?

Absolutely. Every conference welcomes many first time attendees, and one of the things people tell us most often is how quickly they felt at home.

Is the conference family friendly?

Yes. Families are at the heart of our community, and attendees of all ages are welcome. More information on programming for kids and teens coming soon!