NHS: IAMRARE Mobile App Now Available!

The NHS Is Now at Your Fingertips! Help advance Gorlin syndrome research whenever, wherever.

Keeping up with the GSA Natural History Study (NHS) just got easier! The IAMRARE mobile app gives you convenient access to the NHS right from your phone.

Waiting for an appointment? Sitting in the school pickup line? Have a few minutes while you’re scrolling? Now you can use that downtime to enroll in the NHS, complete a few questions, or update your account with new health information.

And remember, you don’t have to complete everything at once. You can start and stop at any time, and your information will be saved so you can pick up right where you left off.

For those already enrolled, the app makes it even easier to keep your information current as things change. Because the NHS is a longitudinal study, your updates over time are an important part of helping researchers understand the full experience of living with Gorlin syndrome.

The IAMRARE mobile app is available from the Apple Store and Google Play. Download today and keep the NHS at your fingertips!