NEW to the Gorlin community
Gorlin syndrome
Gorlin syndrome, also known as nevoid basal cell carcinoma syndrome, basal cell carcinoma nevus syndrome, Gorlin-Goltz syndrome, or basal cell nevus syndrome, is a rare genetic disorder. Gorlin syndrome can affect every organ system of the human body. People with Gorlin syndrome are at increased risk of developing basal cell carcinoma (BCC) skin cancers and non-cancerous tumors. Basal cell carcinomas are the most common manifestation of Gorlin syndrome.
Find what you
need when
you need it
Being diagnosed can be overwhelming, but you are not alone. The GSA is here to help. Our mission is to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome. Be sure to click the links to follow the Gorlin Syndrome Alliance on our social media platforms and click HERE to sign up for the monthly e-blast. We regularly post and communicate with our members about clinical trials, the GSA Patient Registry and up and coming webinars, in-person conferences, town halls and other events!
New to Gorlin Syndrome Essentials
GSA Community Groups
The GSA is excited to offer quarterly community group meetings! One of the most valuable services the GSA can provide is connections with others who truly understand the emotional and physical aspects of Gorlin Syndrome. And here they are… right from the comfort of your own home!
Building Your Care Team
Gorlin syndrome is a complex disease that is not common. Because of this complexity and rarity, the knowledge of how to treat and manage Gorlin syndrome is not widespread among health care providers. As with any chronic disease, the key to healthy success with Gorlin syndrome is to build a trusted medical care team to monitor and treat symptoms.
