Conference Recap

The GSA’s National Conference that took place June 23-25, 2023 was a tremendous success. The informative talks by disease experts were well received. Sessions were dedicated to coping and managing life with Gorlin syndrome which attendees found to be very meaningful. Attendees furthered their understanding of the critical importance of participating in the Gorlin Syndrome Alliance Patient Registry (GSAPR) and completed their enrollment. Information on up and coming clinical trials was presented. Photo opportunities were plentiful with a group of visitors from a galaxy far, far way AND on our Chicago River Architectural Boat Tour.

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National Conference Presentations Now Available

SPEAKERS

Dr. Jed Gorlin
Son of Dr. Robert Gorlin, Medical Director of the Memorial Blood Center in Minnapolis, and Keynote Speaker

Dr. Ervin Epstein
Dermatologist with extensive experience in caring for people with Gorlin syndrome, and Keynote Speaker

Dr. Jackie L. Papadakis
Pediatric Psychologist

Shelly McQuaid, MS, CGC
Genetic Counselor and Instructor of Pediatrics

Dr. Murad Alam
Mohs Surgeon, Dermatology

Dr. Brian Cahn
A dermatology resident at the University of Illinois with significant interest in Gorlin syndrome

Dr. Stacey J Feuer, PsyD, MLD
Health Psychologist, Rare Disease Advocate

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Everything You Need to Know About the GSA National Conference

What is National Conference?

The GSA National In-Person Conference is the destination for the GSA community to come together face-to-face, learn more about Gorlin syndrome, have time with others dealing with the same issues, learn what is new and of the hope for the future. At this conference, attendees will have the opportunity to interact with their peers, medical professionals in various specialties, pharmaceutical companies, and more.

When will registration open?

Registration is open now. Click here!

What can I expect at National Conference?

These unforgettable three days will allow you to have time interacting with people living with Gorlin syndrome, medical professionals, pharmaceutical representatives, and others. There is nothing more valuable than sharing time with those experiencing life with this rare disease.