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February 28, 2025

Articles By admin

Kevin Gullat

Posted by admin, Mar 28, 2018

Being the spouse of someone with BCCNS (or any other condition for that matter) can be a challenge. I do not mean to imply ...

Annewil Stelloo

Posted by admin, Mar 28, 2018

My name is Annewil, I am 30 years old and live in The Netherlands. In 2010 at age 27 I learned that I had Basal Cell ...

Margaret Emery

Posted by admin, Mar 28, 2018

My name is Margaret Emery. I live with my husband Paul and our two sons Damian (who has Gorlin Syndrome) and Simon in ...

Monica Murray

Posted by admin, Mar 28, 2018

“What’s wrong with your baby?” Mom often heard from the mouths of curious, but ill-mannered children; or from the eyes of ...

Douglas Family

Posted by admin, Mar 28, 2018

When I was diagnosed with Gorlin Syndrome, I was just a kid. I didn’t know what to think. I knew it wasn’t cancer or a ...

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