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    February 28, 2025
    Articles By admin

    GSA Patient Registry

    Posted by admin, Apr 03, 2021
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    Women with GS who had ovarian fibromas may be more susceptible to BCCs

    Posted by admin, Mar 10, 2021

    For our health care providers: Why people with GS should limit exposure to X-rays and CT scans when possible.

    Posted by admin, Mar 10, 2021

    Severe PATCHED1 Deficiency in Cancer-Prone Gorlin Patient Cells Results in Intrinsic Radiosensitivity

    Posted by admin, Mar 10, 2021
    Severe PATCHED1 Deficiency in Cancer-Prone Gorlin Patient Cells Results in Intrinsic Radiosensitivity

    There may be improved long term outcome by use of 5-fluorouracil during surgery for jaw cysts (OKCs).

    Posted by admin, Mar 08, 2021

    Plaquenil Facts

    Posted by admin, Jan 27, 2021

    COVID-19 AND GORLIN SYNDROME PATIENTS

    Posted by admin, Jan 11, 2021

    Erivedge and COVID-19 Vaccines

    Posted by admin, Dec 12, 2020

    Report of FDA Gorlin Syndrome Patient-Led Listening Session 11/09/2020

    Posted by admin, Nov 23, 2020

    Virtual Patient Conference October 24 @ 11am Eastern

    Posted by admin, Oct 05, 2020

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    Contact Us

    Email: info@gorlinsyndrome.org

    Address: 

    3005 S. Lamar Blvd D109 #264

    Austin, TX 78704

    Phone: 267-689-6443

     

    Join the GSA Community to find support, empowerment and hope. You are not alone.
     
    Our mission: to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.