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Basal Cell Carcinoma Nevus Syndrome Life Support Network
You are invited to participate in the following research study surveys.
What is BCCNS?
Also known as Gorlin Syndrome, Gorlin-Goltz Syndrome, Basal Cell Nevus Syndrome, or Nevoid Basal Cell Carcinoma Syndrome, BCCNS is a rare genetic disorder that may affect all systems of the body and makes affected individuals more susceptible to various forms of cancer—especially basal cell carcinoma, a form of skin cancer. For more general information about the syndrome, click here.”
To provide information for children and adults manifesting the inherited genetic disorder most commonly known as Basal Cell Carcinoma Nevus Syndrome (BCCNS). We hope, through information and education, that individuals will be diagnosed and treated earlier.
To gather information about the medical conditions and disorders experienced by those living with BCCNS; to share this information with clinics and health care providers treating patients with BCCNS and other similar disorders; and to undertake a collaborative approach to the diagnosis, treatment, prevention, and cure of the disorders encompassed by BCCNS.
To provide a supportive environment for families seeking treatment for their children and other family members, and to train physicians, nurses, and other healthcare providers to communicate more effectively with BCCNS patients and their families, as well as other similarly affected populations.
We Will Provide:
Referrals to specialists and/or healthcare facilities most able to diagnose and treat effectively the disorders and diseases encompassed by BCCNS.
Education, resources and research about the genetic disorder known as BCCNS, and similar or allied disorders.
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|The information in this web site is for educational purposes only, and is not providing medical or professional advice.
It should not be used for diagnosing or treating a health problem or disease. It is not a substitute for
professional medical care. If you have or suspect you might have any health problems, you should consult a physician.
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