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Skin Up, Roses Down 2026


Join us to raise awareness and funds for Gorlin Syndrome and Cystic Fibrosis!

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Event Details

Join us for the 3rd Annual Skin for Skin event to show support for Nolan Hodge and the Gorlin Syndrome Alliance! 

We are once again teaming up with the O'Grady Family and their "65 days for 65 Roses” Great Strides Fundraiser for the Cystic Fibrosis Foundation.

 

📆 March 14th, 2026

📍 Sunday River

🎿 Skin Up at 9 AM

🌹 Roses Down at 2 PM

 

More details coming soon!

 

Questions? 

Email Taylor

If you’d like to donate to the CF foundation, please visit Riley’s fundraising page here.

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Contact Us

info@gorlinsyndrome.org

267-689-6443

 

Gorlin Syndrome Alliance

3005 S. Lamar Blvd D109-264

Austin, TX 78704

The Gorlin Syndrome Alliance is a 501 (c) (3) nonprofit organization.  (EIN# 34-1915691).

 

Join the GSA Community to find support, empowerment and hope. You are not alone.
 
Our mission: to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.