New Clinical Trial Opportunity
A study is opening to approximately 60 participants for the [...]
This survey provides comprehensive information on the challenges the Gorlin syndrome community faces.
Gorlin syndrome (GS) is a rare autosomal dominant disease [...]
Women with GS who had ovarian fibromas may be more susceptible to BCCs
Incidence of Gorlin Syndrome and Its Relation to Malignancy of [...]
For our health care providers: Why people with GS should limit exposure to X-rays and CT scans when possible.
Severe PATCHED1 Deficiency in Cancer-Prone Gorlin Patient Cells Results in [...]
Severe PATCHED1 Deficiency in Cancer-Prone Gorlin Patient Cells Results in Intrinsic Radiosensitivity
Severe PATCHED1 Deficiency in Cancer-Prone Gorlin Patient Cells Results in [...]
There may be improved long term outcome by use of 5-fluorouracil during surgery for jaw cysts (OKCs).
(This study did not include people affected with GS.) [...]
Plaquenil Facts
Julie Breneiser, GSA's Executive Director has provided great information! Plaquenil [...]
COVID-19 AND GORLIN SYNDROME PATIENTS
At this time there is no evidence to suggest an [...]
Erivedge and COVID-19 Vaccines
Genentech, the pharmaceutical company that makes Erivedge (vismodegib) has supplied [...]
Further Optimism for the Future
A message from Julie Breneiser, BCCNS Alliance President Dear BCCNS [...]