Members

GSA Patient Registry

Enroll Today! [...]

admin2022-05-19T18:30:29+00:00April 3, 2021|

World Rare Disease Day

Watch the following video about World Rare Disease Day:

admin2021-09-12T23:34:08+00:00December 16, 2019|

Tractor Pull & a BCCNS Alliance Member Makes for a Winning Combination

The fourth annual Fall Smoke Out Truck and Tractor Pull [...]

admin2018-12-19T01:48:58+00:00December 19, 2018|

Further Optimism for the Future

A message from Julie Breneiser, BCCNS Alliance President Dear BCCNS [...]

admin2018-12-19T00:34:57+00:00December 19, 2018|

The Difference a Phone Call Makes

It’s about 8 o’clock and my day is starting to [...]

admin2018-12-02T04:43:30+00:00December 2, 2018|

Kevin Gullat

Being the spouse of someone with BCCNS (or any other [...]

admin2018-03-28T14:37:14+00:00March 28, 2018|

Annewil Stelloo

My name is Annewil, I am 30 years old and [...]

admin2018-03-28T14:36:17+00:00March 28, 2018|

Margaret Emery

My name is Margaret Emery. I live with my husband [...]

admin2018-03-28T14:34:58+00:00March 28, 2018|

Monica Murray

“What’s wrong with your baby?” Mom often heard from the [...]

admin2018-03-28T14:31:46+00:00March 28, 2018|

Douglas Family

When I was diagnosed with Gorlin Syndrome, I was just [...]

admin2018-03-28T14:02:56+00:00March 28, 2018|