Why and How I Fell in Love with Gorlin Syndrome
Dr. Ervin Epstein
National Conference 2023
June 23-25, 2023
Chicago Illinois
Dr. Ervin Epstein Jr, MD is a dermatologist in Oakland, CA and has over 56 years of experience in the medical field. Dr. Epstein has extensive experience in treating Gorlin syndrome. Dr. Epstein is the co-founder of PellePharm and serves of the GSA Medical and Scientific Advisory Board.
Growing Up a Gorlin: Dr. Jed Shares About His Father’s Life Work Helping People Affected by Gorlin Syndrome
Dr. Jed Gorlin
National Conference 2023
June 23-25, 2023
Chicago Illinois
Dr. Jed Gorlin is board certified in pediatrics and blood banking and transfusion medicine. Dr. Gorlin is the VP of Medical and Quality Affairs for Innovative Blood Resources. Dr. Gorlin served on the boards of AABB and the National Blood Foundation. He is associate clinical professor of laboratory medicine at University of Minnesota.
Insights on Coping with the Burdens of Gorlin Syndrome
Dr. Stacey Feuer
National Conference 2023
June 23-25, 2023
Chicago Illinois
Dr. Feuer has a passion for working with individuals living with chronic medical illness as a clinical health psychologist, healthcare consultant, and speaker. Through her work, she helps patients live healthier, more resilient lives while coping with medical difficulties. She has experience with a wide range of medical diagnoses, and specializes in individuals living with the unique challenges of rare, ultra-rare, and/or genetic diseases.
Managing Lumps, Bumps, Lesions in Children with Gorlin Syndrome
Dr. Elena Hawryluk
National Conference 2023
June 23-25, 2023
Chicago Illinois
Elena B. Hawryluk, MD, PhD is a board-certified Dermatologist and Pediatric Dermatologist, and Associate Professor of Dermatology at Harvard Medical School, where she serves as the Faculty Director of Pediatric Dermatology for the Harvard Combined Dermatology Residency Program. Dr. Hawryluk is a member of the GSA Medical and Scientific Advisory Board.
How to Manage, Monitor and Treat Odontogenic Keratocysts (OKCs) in People of All Ages
Dr. Jim Swift
National Conference 2023
June 23-25, 2023
Chicago Illinois
Dr. Jim Swift is the Committee Co-Chair Oral and Maxillofacial Surgery Director, Advanced Specialty Education Program in Oral and Maxillofacial Surgery University of Minnesota. Dr. Swift is also a member of the Gorlin Syndrome Alliance Scientific and Advisory Board.
Gorlin Syndrome 101
Julie Breneiser, GSA Executive Director
National Conference 2023
June 23-25, 2023
Chicago Illinois
Mrs. Breneiser’s work with the GSA focuses on collaboration with industry to bring new and/or potential treatments to clinical trial. She also provides individual support to affected patients and their caregivers along with educating health care providers about this rare disease. Mrs. Breneiser serves on the FDA’s Patient engagement Collaborative.
Insights on Self-Care, and Resilience for Parents and Kids Affected with or by Gorlin Syndrome
Jackie L. Papadakis, PhD
National Conference 2023
June 23-25, 2023
Chicago Illinois
Dr. Papadakis is a pediatric psychologist in the Pritzker Department of Psychiatry and Behavioral Health at Lurie Children’s and an Assistant Professor of Psychiatry and Behavioral Sciences at Northwestern University Feinberg School of Medicine. She specializes in treating mood, anxiety, behavioral, and adjustment disorders using evidence-based individual, family, and group psychotherapeutic approaches for youth with chronic health conditions.
Clinical Practice Guidelines for the Treatment of Basal Cell Carcinoma
Dr. Brain Cahn
National Conference 2023
June 23-25, 2023
Chicago Illinois
Dr. Cahn is a dermatologic resident who completed a wound healing research fellowship at the Dr. Phillip Frost Department of Dermatology and Cutaneous Surgery at the University of Miami. As a dermatology resident at UIC, he brings compassion for his patients with a desire for excellence in clinical dermatology. His research interests include wound healing, cutaneous oncology and education. Dr. Cahn is the recipient of the 2023 GSA Medical Grant.
The Genetics of Gorlin Syndrome
Shelly Weiss McQuaid, MS CGC
National Conference 2023
June 23-25, 2023
Chicago Illinois
Shelly Weiss McQuaid is a genetic counselor for the Division of Hematology, Oncology and Stem-Cell Transplantation at Lurie Children’s. She founded the Cancer Predisposition Program in 2016 with goals of providing comprehensive genetic counseling services for pediatric oncology patients and their families who are at risk of hereditary cancer syndromes.