GSA’s Mission

The GSA’s mission is to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.

GSA Giving

We continue to support thousands in the Gorlin syndrome community throughout the pandemic.  Covid-19 has created many obstacles and unforeseen challenges in 2020.  The GSA has embraced this as an opportunity to increase our outreach in significant and impactful ways.  Our ability to provide meaningful connections, support, educational opportunities to our community, and work with pharmaceutical companies and researchers interested in finding better treatments is what the GSA is all about.  We encourage all who are able to give, to do so now to help the GSA continue to help during these unprecedented times and beyond.

Support Gorlin Syndrome Research and Education

Your donation helps GSA serve people with Gorlin syndrome.

Your donation to the Gorlin Syndrome Alliance supports our mission to help people affected by Gorlin syndrome while promoting research leading to better treatments and eventually a cure.

There are many ways you can donate to the Gorlin Syndrome Alliance. All size gifts help us serve the thousands of people with Gorlin syndrome in the U.S. and their families.

Golf for the GSA across the USA

The Gorlin Syndrome Alliance is excited to partner with the Hodge Family to raise funds for the GSA through our Golf for the GSA across the USA initiative.  There are three easy ways to participate in September and October 2023.

  1. Click HERE to register to join us for lunch, volunteer or play in the tournament at Pease Golf Course in Portsmouth NH, on Monday, October 9th.
  2. Grab some friends to play at a course near you, go to a driving range (or facility such as Top Golf, Drive Shack or Big Shots) and ask your companions to donate to the GSA.  Need a flyer to get the word out?  Click HERE for a sample and contact the GSA HERE with details so we can personalize it especially for you!
  3. Gather family and friends and play at your favorite miniature golf course.  Request they donate to the GSA. Need a flyer to get the word out?  Click HERE  for a sample and contact the GSA HERE with details so we can personalize it especially for you!

Be sure to take LOTS of photos and use the tag #GolfForGorlin and @GorlinSyndromeAlliance on all your social media channels

Gather family and friends this fall as we raise funds to help the GSA further its mission to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome.

Donate online or by mail

Donate online here

Or, send your donation to:

Gorlin Syndrome Alliance
PO Box 4
Reading, PA 19607

Make it monthly
Make automatic, monthly donations through your debit or credit card. Choose the amount you want to give and the timeframe and we’ll take care of the rest.

Honor a loved one

Give the gift of a brighter future for people with Gorlin syndrome.

Matching gifts

Double or triple the size of your gift by participating in your employer’s matching gift program. Ask your HR department if your company matches employee charitable donations.

Make a planned gift

Donate to help GSA speed up the pace of Gorlin syndrome research.

Remember the Gorlin Syndrome Alliance in your will or make a gift of appreciated stocks. Call the GSA at (267) 689-6443 for more information.

United Way

Give to the Gorlin Syndrome Alliance by designating your workplace United Way contribution.

Host an event

Plan a grassroots event in your hometown to promote awareness of Gorlin syndrome in your community and raise much-needed funds for Gorlin syndrome research, education and patient support. Learn more about DIY fundraising.