Being the spouse of someone with BCCNS (or any other condition for that matter) can be a challenge. I do not mean to imply for a single second that I regret having Christen as my
My name is Annewil, I am 30 years old and live in The Netherlands. In 2010 at age 27 I learned that I had Basal Cell Carcinomas (BCCs). Two ‘normal’ moles were removed for ‘cosmetic’
My name is Margaret Emery. I live with my husband Paul and our two sons Damian (who has Gorlin Syndrome) and Simon in Highbury; a suburb of Adelaide, South Australia in Australia.
“What’s wrong with your baby?” Mom often heard from the mouths of curious, but ill-mannered children; or from the eyes of curious, but afraid to ask adults. Defensively she would say,
When I was diagnosed with Gorlin Syndrome, I was just a kid. I didn’t know what to think. I knew it wasn’t cancer or a big-time sickness. All I knew was I had “it”. For a pretty long
Lisa Tack serves on the BCCNS Life Support Network Board of Trustees. As a board member, Lisa helps steer the organization to a sustainable and meaningful future. What is your