“Fear of failure seems to be larger than the fear of fatigue.” My parents knew a few things at the beginning of my life. That sports were not exactly my strong suit and
Being the spouse of someone with BCCNS (or any other condition for that matter) can be a challenge. I do not mean to imply for a single second that I regret having Christen as my
My name is Annewil, I am 30 years old and live in The Netherlands. In 2010 at age 27 I learned that I had Basal Cell Carcinomas (BCCs). Two ‘normal’ moles were removed for ‘cosmetic’
My name is Margaret Emery. I live with my husband Paul and our two sons Damian (who has Gorlin Syndrome) and Simon in Highbury; a suburb of Adelaide, South Australia in Australia.
“What’s wrong with your baby?” Mom often heard from the mouths of curious, but ill-mannered children; or from the eyes of curious, but afraid to ask adults. Defensively she would say,
When I was diagnosed with Gorlin Syndrome, I was just a kid. I didn’t know what to think. I knew it wasn’t cancer or a big-time sickness. All I knew was I had “it”. For a pretty long
Lisa Tack serves on the BCCNS Life Support Network Board of Trustees. As a board member, Lisa helps steer the organization to a sustainable and meaningful future. What is your