Join a clinical trial and advance research into Gorlin syndrome
Across the U.S., researchers are hard at work looking for better treatments and perhaps a cure for Gorlin syndrome. Clinical trials play a critical role in this process to bring new therapies and treatments to market. A clinical trial is a research study done with people to see if a new treatment, therapy or medication works as expected.
Why participate in a clinical trial?
Clinical trials not only benefit research, they benefit the people with Gorlin syndrome who participate.
Clinical trials offer many participants with Gorlin syndrome the following:
- The chance for early access to certain treatments and therapies before they are widely available
- Regular monitoring from a health care provider or medical team
- The opportunity to advance Gorlin syndrome research and help thousands of others with this disease
How to participate in a clinical trial
Start by signing up to receive clinical trial notices from the Gorlin Syndrome Alliance. We’ll send you information about clinical trials related to Gorlin syndrome in your area.
ClinicalTrials.gov is a database of clinical trials being conducted around the world for all different disease types. You can search clinicaltrials.gov for trials specifically for Gorlin syndrome or for a particular symptom or manifestation.
Don’t forget to ask your provider for recommendations of clinical trials in your area.