Do you want to improve the quality and quantity of life for someone with Gorlin syndrome? Or invest in the promise of science for the future? Do you want better treatments and an eventual to be found for Gorlin syndrome and all its manifestation? Yes…then you’ve found the right place.
The heart of the Gorlin Syndrome Alliance is connections. We connect Gorlin syndrome patients with knowledgeable physicians through our Physician Referral Listing. We connect with pharmaceutical companies to bridge the gap between industry and the patients’ unmet needs. We connect the Gorlin syndrome community, providing opportunities for members to meet each other virtually or in-person. All these connections reinforce our members that they are not alone in their journey with this rare disease. We connect with the leading Gorlin syndrome researchers to improve patient outcomes, expand better treatments, and work towards a cure. We work tirelessly to ensure that those with Gorlin syndrome are living rich, full, and happy lives, but….
We can’t do it alone
The Gorlin Syndrome Alliance is funded solely through the generosity of members and industry partners. We receive no government funding or foundation giving. We operate on a very limited budget and promise to use your gift in the wisest way possible.
How You Can Help
Making a donation to the Gorlin Syndrome Alliance is easy! There are many ways you can have an impact within our community. Even the smallest gift can make a difference, as all donations can add up and is more than we had before!
*Consider making a sustainable impact on the Gorlin syndrome Community by making a monthly donation.
Double or triple the size of your gift by participating in your employer’s matching gift program.
Make a Planned Gift
The opportunities for charitable gifts include, securities, tangible assets and bequests.
Give to the Gorlin Syndrome Alliance by donor-designating your United Way contribution.
Send a Donation in by Mail
Gorlin Syndrome Alliance
PO Box 1322
Kulpsville, PA 19443
If you have any questions about donating, please call the Gorlin Syndrome Alliance Office at (267) 689-6443.