Dr. Sean Christensen, Assistant Professor of Dermatologic Surgery at Yale University School of Medicine, joined Julie Breneiser, president of the Gorlin Syndrome Alliance, patient, and mother of two affected children, for a live discussion about the Patidegib Clinical Trial involving a topical hedgehog inhibitor. If you were unable to join in on the conversation, you […]
The 2019 National Conference was a huge success!! With over 105 people registered, the hotel was filled with patients, caregivers, faculty, pharma execs, and staff. Nearly 60% of the those affected with Gorlin syndrome never attended a national conference before! You could really feel how the GSA touched the lives of our members in significant […]
PellePharm, Inc., a late clinical-stage biopharmaceutical company committed to targeting rare dermatologic conditions at their source, today announced it has dosed the first patient in a pivotal Phase 3 clinical trial of Patidegib Topical Gel, 2%, vs. vehicle gel in patients with Gorlin Syndrome. The Phase 3 study is intended to assess the safety and […]
Thank you for your interest in participating in the Phase III Patidegib 2% topical gel clinical trial for the reduction of disease burden of basal cell carcinomas in Gorlin Syndrome sponsored by PellePharm. The participating sites in the US are listed below and is divided into three categories based upon their current status of enrollment. […]
Patient recruitment is starting for Pellepharm’s Phase III Patidegib Topical Gel 2%. The BCCNS Alliance is working closely with Pellepharm and maintains the most up-to-date list of clinical sites. Click here for more information about the trial and site locations.
News Alert – Review the Patidegib 2% Topical Gel Clinical Trial Posting Pellepharm’s Phase III Clinical Trial for Patidegib Topical Gel 2% just posted to ClinicalTrials.gov Patient recruitment for Pellepharm’s Phase 3 Patidegeb Topical Gel 2% is not currently active since the site locations cannot be published until contracts are signed and official. The BCCNS […]
“Fear of failure seems to be larger than the fear of fatigue.” My parents knew a few things at the beginning of my life. That sports were not exactly my strong suit and that I was born with Basal Cell Carcinoma Nevus Syndrome (BCCNS). The two, in my opinion, have been conquered together. Although I knew […]