Report of FDA Gorlin Syndrome Patient-Led Listening Session 11/09/2020
Session Objectives: Educate the FDA staff on the complex issues [...]
Session Objectives: Educate the FDA staff on the complex issues [...]
We are proud to announce our first virtual conference, “Forging [...]
Julie Breneiser, Executive Director Notes Hi Everyone and thanks so [...]
A number sign (#) is used with this entry because basal cell nevus syndrome [...]
Purpose: The antimetabolite drug, 5-fluorouracil (5-FU), is used in [...]
Nevoid basal cell carcinoma syndrome, or basal cell nevus syndrome [...]
Gorlin syndrome, also called nevoid basal cell carcinoma syndrome, is [...]
Watch the following video about World Rare Disease Day:
Transitions, no matter what the age and personal situation can [...]
The fourth annual Fall Smoke Out Truck and Tractor Pull [...]