As the Gorlin Syndrome Alliance continues to grow and evolve, so does the administrative team behind the exciting advances in the organization. Julie Breneiser has shifted from her role as volunteer President of the GSA Board of Directors to the newly appointed Executive Director. Not only do Julie’s executive-level skills and established knowledge make her a great fit for the job, but she is also a patient with Gorlin Syndrome as well as a mother of two affected young adults.
“On September 1st I took on the role of Executive Director of the Gorlin Syndrome Alliance. These are huge shoes to fill but, I am excited for the challenge. Jean Pickford remains on our staff as Associate Director. Lindsay Hartman has jumped in with a strong start and is now our Program Manager. Madeline Miller is with us until the end of September.
My goal remains the same as it was when I was President of the Board of Directors, in that everything I do is focused on improving the quality and quantity of the lives of people with Gorlin Syndrome. We are working diligently to provide support and information, raise awareness, and work with industry and researchers to develop more treatment options and ultimately a cure for Gorlin syndrome. It feels so good to help make a difference in this way.”